Case Studies

An NIH study of treatments for high blood pressure, called the ALLHAT trial, shows some of the strengths and limitations of comparative effectiveness research to improve patient care. More...

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February 3, 2012 |

On Tuesday night, PIPC Chairman Tony Coelho joined former HHS Secretary Tommy Thompson at the University of Charleston in West Virginia for a speaker series titled "Who Decides Patient Treatments" to discuss the future of health care in the United States.

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January 30, 2012 |

PCORI released a draft of their National Priorities for Research and Research Agenda for public comment. The PCORI Board, which is responsible for funding research, is asking for a 55 day public comment period to discuss and solicit feedback from patients, caregivers, professionals, and the general public on the research priorities.

In the draft, PCORI prioritized five broad research areas:

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October 18, 2011 |

When conducting Comparative Effectiveness Research it is crucial to understand the differences between the players involved in the process. In his remarks at the  2nd Annual Forum on Achieving Patient centeredness , Marc Boutin, executive vice president and COO at the National Health Council, discussed the important differences between the three major players in the process: the patient, the consumer, and the patient advocacy organization. He stated that many times when the patient is discussed they are not defined.

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PIPC Supports Comparative Effectiveness Research Language in New Senate Health Reform Bill

WASHINGTON, DC - The Partnership to Improve Patient Care (PIPC), a non-partisan, patient- focused, grassroots organization focused on securing patient-centered comparative effectiveness research (CER) voiced its strong support of the comparative effectiveness research provisions in Senate Finance Committee Chairman Max Baucus’s health reform proposal released today.

“Patients and health care providers across the country can benefit from the strong, patient-centered approach to comparative effectiveness research that is included in this proposal,” PIPC Chairman and epilepsy patient Tony Coelho said. “Sen. Baucus’s measure creates an independent Institute governed by patients, providers, government officials and other stakeholders, and further strengthens safeguards to protect patient access to the treatment options they need. This provides a sound framework for independent, sustained, and objective research that is focused on the needs of patients.”

“By creating an independent research Institute and including significant patient safeguards, the CER provisions will ensure that relevant, credible data is available to patients and their healthcare providers, and help ensure that information is used to inform treatment options, not limit them,” Mr. Coelho said.

Sen. Baucus’s measure includes expanded patient safeguards including a focus on clinical effectiveness research, not cost-effectiveness; and provisions to ensure that the Centers for Medicare and Medicaid Services will not misuse CER results in ways that overlook differences in patient needs or discriminate against the elderly or people with disabilities.

“The most important stakeholder in the medical community is the patient,” Mr. Coelho said. “Sen.
Baucus’s proposal puts patients at the center of comparative effectiveness research, providing assurance that research will be focused on improving patient care and not cutting costs by restricting access to treatment options.”

PIPC also supports similar legislation (H.R. 2502) that has been introduced in the House by Rep. Kurt Schrader and 18 cosponsors, and an amendment, proposed by Delegate Christensen, that is currently pending before the Energy and Commerce Committee.

About PIPC
The Partnership to Improve Patient Care was formed in November 2008 to support new comparative effectiveness research proposals that are centered on patient and provider needs; raise awareness about the value of well-designed CER; and promote the important role of continued medical innovation as part of the solution to cost and quality challenges in health care. Partnership members include a wide range of healthcare organizations representing patient, provider and industry advocacy groups.

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