Case Studies

An NIH study of treatments for high blood pressure, called the ALLHAT trial, shows some of the strengths and limitations of comparative effectiveness research to improve patient care. More...

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July 6, 2010 |

Partnership to Improve Patient Care (PIPC) chairman, Tony Coelho, recently delivered a speech on patient centered comparative effectiveness research (CER) in front of fifty specialty doctors from around the country, among others, at the Alliance for Specialty Medicine’s (ASM) “Capitol Hill Advocacy Conference.” The conference took place just a day before the specialty doctors met w

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June 24, 2010 |

Below: PIPC Chairman Tony Coelho's recent speech on patient centered CER. The speech was delivered on Tuesday, June 22, 2010 at the Alliance for Specialty Medicine's “Capitol Hill Advocacy Conference,” in Washington, D.C.

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June 10, 2010 |

A new Health Affairs article concludes, based on focus groups and interviews, that "consumers will revolt if evidence-based efforts are perceived as rationing or as a way to deny them needed treatment."

You don't need to look any further than public reaction to the U.S. Preventive Service Task Force's updated recommendations on mammography screening to see the proof of this.
 
How should policy-makers react? Should they conclude that consumers, and even more so, patients, cannot be relied on to make evidence-based decisions, and therefore these decisions need to be made for them? Or should they conclude that evidence-based models of medical care and health delivery need to be carefully constructed so they have the trust and support of patients and consumers?

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Patient-Centered Policy Must Accompany Funding for Comparative Effectiveness Research, PIPC Says

Tony Coelho, chairman of the Partnership to Improve Patient Care (PIPC), praised the Administration’s commitment to advancing patient-centered comparative effectiveness research, and urged enactment of CER legislation to ensure that the research is genuinely focused on patient and provider needs.

“We applaud President Obama for his commitment to comparative effectiveness research in his 2011 budget.  As stated previously by the President and HHS Secretary Kathleen Sebelius, such research can help doctors and patients make good decisions about the best course of treatment for the individual.

“However, achieving patient-centeredness in CER requires more than additional funding. It also is essential to establish a solid policy framework to focus research on patient and provider needs and preserve the ability of physicians to choose the care that best care to the different needs of each patient. Without strong requirements to keep the patient at the center of CER, there is a substantial risk that it will lead to one-size-fits-all ‘best practices’ that prevent physicians for tailoring care to each patient’s needs.

“Over the past year, PIPC and more than 100 groups representing patients, physicians and other stakeholders have worked to ensure that patient-centered CER be included in health care reform. Senators Max Baucus (MT) and Kent Conrad (ND) have led the Senate’s efforts on strong patient-centered CER legislation, which Senate Majority Leader Harry Reid (NV) included in the Senate version of the health care bill.  On the House side, Congressman Kurt Schrader (OR-5) has led the effort to ensure good CER is a part of that chamber’s health care reform legislation. His bill (H.R. 2502) has over 60 bipartisan co-sponsors.

The legislation crafted by Sens. Baucus and Conrad and Rep. Schrader over the past year would create a sound framework for independent, sustained, and objective research that is focused on the clinical questions that matter to patients and doctors. They would create an independent institute governed by patients, providers, government officials and other stakeholders, while further strengthening safeguards to protect patient access to the treatment options they need. The bills also include important patient protections so that patients are not denied access to care based on arbitrary cost thresholds and physicians continue to have flexibility in applying the evidence to individual patient needs.

About PIPC
The Partnership to Improve Patient Care (PIPC) was formed in November 2008 to support new comparative effectiveness research (CER)proposals that are centered on patient and provider needs; raise awareness about the value of well-designed CER; and promote the important role of continued medical innovation as part of the solution to cost and quality challenges in health care. PIPC members include a wide range of health care organizations representing patient, provider and industry advocacy groups.