Case Studies

An NIH study of treatments for high blood pressure, called the ALLHAT trial, shows some of the strengths and limitations of comparative effectiveness research to improve patient care. More...

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February 3, 2012 |

On Tuesday night, PIPC Chairman Tony Coelho joined former HHS Secretary Tommy Thompson at the University of Charleston in West Virginia for a speaker series titled "Who Decides Patient Treatments" to discuss the future of health care in the United States.

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January 30, 2012 |

PCORI released a draft of their National Priorities for Research and Research Agenda for public comment. The PCORI Board, which is responsible for funding research, is asking for a 55 day public comment period to discuss and solicit feedback from patients, caregivers, professionals, and the general public on the research priorities.

In the draft, PCORI prioritized five broad research areas:

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October 18, 2011 |

When conducting Comparative Effectiveness Research it is crucial to understand the differences between the players involved in the process. In his remarks at the  2nd Annual Forum on Achieving Patient centeredness , Marc Boutin, executive vice president and COO at the National Health Council, discussed the important differences between the three major players in the process: the patient, the consumer, and the patient advocacy organization. He stated that many times when the patient is discussed they are not defined.

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Patient-Centered Policy Must Accompany Funding for Comparative Effectiveness Research, PIPC Says

Tony Coelho, chairman of the Partnership to Improve Patient Care (PIPC), praised the Administration’s commitment to advancing patient-centered comparative effectiveness research, and urged enactment of CER legislation to ensure that the research is genuinely focused on patient and provider needs.

“We applaud President Obama for his commitment to comparative effectiveness research in his 2011 budget.  As stated previously by the President and HHS Secretary Kathleen Sebelius, such research can help doctors and patients make good decisions about the best course of treatment for the individual.

“However, achieving patient-centeredness in CER requires more than additional funding. It also is essential to establish a solid policy framework to focus research on patient and provider needs and preserve the ability of physicians to choose the care that best care to the different needs of each patient. Without strong requirements to keep the patient at the center of CER, there is a substantial risk that it will lead to one-size-fits-all ‘best practices’ that prevent physicians for tailoring care to each patient’s needs.

“Over the past year, PIPC and more than 100 groups representing patients, physicians and other stakeholders have worked to ensure that patient-centered CER be included in health care reform. Senators Max Baucus (MT) and Kent Conrad (ND) have led the Senate’s efforts on strong patient-centered CER legislation, which Senate Majority Leader Harry Reid (NV) included in the Senate version of the health care bill.  On the House side, Congressman Kurt Schrader (OR-5) has led the effort to ensure good CER is a part of that chamber’s health care reform legislation. His bill (H.R. 2502) has over 60 bipartisan co-sponsors.

The legislation crafted by Sens. Baucus and Conrad and Rep. Schrader over the past year would create a sound framework for independent, sustained, and objective research that is focused on the clinical questions that matter to patients and doctors. They would create an independent institute governed by patients, providers, government officials and other stakeholders, while further strengthening safeguards to protect patient access to the treatment options they need. The bills also include important patient protections so that patients are not denied access to care based on arbitrary cost thresholds and physicians continue to have flexibility in applying the evidence to individual patient needs.

About PIPC
The Partnership to Improve Patient Care (PIPC) was formed in November 2008 to support new comparative effectiveness research (CER)proposals that are centered on patient and provider needs; raise awareness about the value of well-designed CER; and promote the important role of continued medical innovation as part of the solution to cost and quality challenges in health care. PIPC members include a wide range of health care organizations representing patient, provider and industry advocacy groups.