Case Studies

An NIH study of treatments for high blood pressure, called the ALLHAT trial, shows some of the strengths and limitations of comparative effectiveness research to improve patient care. More...

Recent Blog Posts

February 3, 2012 |

On Tuesday night, PIPC Chairman Tony Coelho joined former HHS Secretary Tommy Thompson at the University of Charleston in West Virginia for a speaker series titled "Who Decides Patient Treatments" to discuss the future of health care in the United States.

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January 30, 2012 |

PCORI released a draft of their National Priorities for Research and Research Agenda for public comment. The PCORI Board, which is responsible for funding research, is asking for a 55 day public comment period to discuss and solicit feedback from patients, caregivers, professionals, and the general public on the research priorities.

In the draft, PCORI prioritized five broad research areas:

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October 18, 2011 |

When conducting Comparative Effectiveness Research it is crucial to understand the differences between the players involved in the process. In his remarks at the  2nd Annual Forum on Achieving Patient centeredness , Marc Boutin, executive vice president and COO at the National Health Council, discussed the important differences between the three major players in the process: the patient, the consumer, and the patient advocacy organization. He stated that many times when the patient is discussed they are not defined.

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Meet Tony Coelho

Tony Coelho is a former United States congressman from California, and primary author and sponsor of the Americans with Disabilities Act.

In March 2009, Coelho was named as Chairperson for the Partnership to Improve Patient Care (PIPC). In this capacity, Coelho will work to amplify the voice of the partnership’s diverse members, including people with disabilities, racial and ethnic communities and the elderly, among others.

Coelho also serves as board Chairman of the America Association of People with Disabilities (AAPD), the country’s largest cross-disability membership organization. 

Coelho was elected to Congress in 1978 and served for six terms until 1989. He served on the Agriculture, Interior, Veterans Affairs, and Administration Committees during his tenure, specializing in disabled rights.

In 1986, Coelho was elected House Majority Whip. As the chief vote counter for his party, Coelho oversaw a series of Democratic victories in the House on measures ranging from the budget to cutting off funds for the war in Central America.

Coelho was the original author of the Americans with Disabilities Act, signed into law by President George H.W. Bush. By 1994, the U.S. Census Bureau reported that some 800,000 more people with severe disabilities had found employment than were employed when the bill was first enacted. The promise of Coelho’s political career had been redeemed by the disabled community from whose ranks he had arisen.

President Bill Clinton appointed Coelho to serve as Chairman of the President’s Committee on Employment of People with Disabilities, a position he held from 1994 to 2001. He also served as Vice Chair of the National Task Force on Employment of Adults with Disabilities. In 1998, Clinton appointed Coelho as the United States Commissioner General at the 1998 World Expo in Portugal. Clinton also appointed Coelho as Co-Chair to the U.S. Census Monitoring Board, a position he held until his appointment as general chairman of the Gore presidential campaign.

Coelho now makes his home in Rehoboth Beach, DE. He participates annually at New York Law School for its Tony Coelho Lecture in Disability Employment Law & Policy. He has endowed a chair in Public Policy at the University of California in Merced and also in Neurology for Pediatric Surgery at UCLA. In addition to currently chairing Life Without Limits and the Disability Pride & Power Committee, he serves on the Epilepsy Foundation Board of Directors.