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An NIH study of treatments for high blood pressure, called the ALLHAT trial, shows some of the strengths and limitations of comparative effectiveness research to improve patient care. More...

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Tony Coelho Discusses Patient Care with Former HHS Secretary

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On Tuesday night, PIPC Chairman Tony Coelho joined former HHS Secretary Tommy Thompson at the University of Charleston in West Virginia for a speaker series titled "Who Decides Patient Treatments" to discuss the future of health care in the United States.

PCORI Releases their Draft Priorities

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PCORI released a draft of their National Priorities for Research and Research Agenda for public comment. The PCORI Board, which is responsible for funding research, is asking for a 55 day public comment period to discuss and solicit feedback from patients, caregivers, professionals, and the general public on the research priorities.

In the draft, PCORI prioritized five broad research areas:

Differentiating Patients, Consumers, and Patient Advocacy Organizations

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When conducting Comparative Effectiveness Research it is crucial to understand the differences between the players involved in the process. In his remarks at the  2nd Annual Forum on Achieving Patient centeredness , Marc Boutin, executive vice president and COO at the National Health Council, discussed the important differences between the three major players in the process: the patient, the consumer, and the patient advocacy organization. He stated that many times when the patient is discussed they are not defined.

PIPC Submits Comments to PCORI, Creates Web Page to Compile Comments

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PIPC Submitted Comments to the Patient-Centered Outcomes Research Institute this week on the Institute’s proposed definition of Patient-Centered Outcomes Research.

PIPC expressed support for several elements of the proposed definition, which emphasizes the need for the research to focus on questions that patients and their physicians deem most important and the need for individualization and diversity in patient care.

News Article on PCOR Definition Features AMA, PIPC

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According to an article in Inside Health Policy, the American Medical Association is circulating a letter set go to the Patient-Centered Outcomes Research Institute (PCORI) raising concerns should PCORI use cost considerations in their definition of what they considered P

What Role will CMS play in the Future of CER?

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The actions taken by the Patient Centered Outcomes and Research Institute (PCORI) Board of Governors at their Washington, D.C., meeting made many in the patient and health care communities more confident that the Board is working to be truly-patient centered. The Board members, with the help of the public, came up with a consensus on an improved definition for patient-centered outcomes research that focuses on how CER should be conducted in order to properly focus on patients.

CER Defined by the Intended Audience

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Several prominent figures have discussed patient-centered outcomes research over the past couple of weeks, including Richard Gliklich, M.D., President and CEO of Outcome, who recently posted an article on KevinMD.

CER becomes a major topic of discussion in Washington D.C.

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Last week, the Patient-Centered Outcomes Research Institute’s (PCORI) Board of Governors held a meeting in Washington, D.C., to discuss the importance of patient centered comparative effectiveness research (CER) – also called outcomes research. Several PIPC members were in attendance, including PIPC Chairman Tony Coelho.

PIPC Members and Supporters Speak on Patient Centered Outcomes Research

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The Patient Centered Outcomes Research Institute met in Washington D.C., last week where  several PIPC members spoke during the board’s public commenting period, including Dr. Vera R. Jackson of the Washington Chapter of the Epilepsy Foundation and Kathleen Teixeira of the American Gastroenterological Association (AGA).

Defining our future: What does "patient-centered" mean?

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The term "patient-centered outcomes research" keeps popping up these days - for example, it's used by FDA in the agency's new 5-year strategic plan. And it's been a popular term among researchers and policymakers ever since the Patient Protection and Affordable Care Act created the Patient-Centered Outcomes Research Institute (PCORI).

But what exactly does it mean?

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